Facing Forward Stories shares real stories from parents and parents-to-be living with chronic illness and disability—highlighting both shared experiences and unique journeys. Through these voices, we offer connection, representation, and encouragement, reminding readers they’re not alone and that there’s no single way to keep facing forward.
After becoming a parent, Jennie found herself navigating a Crohn’s disease diagnosis, stoma surgery, and later another pregnancy—all while raising her family.
She shares how openness with her children, practical preparation, and a strong support system help her manage the unpredictability of chronic illness while continuing to face each challenge head on.
| NAME: Jennie PRONOUNS: She/her LOCATION: Blackpool, England DIAGNOSES: Crohn’s disease CHILDREN: 2 biological, 1 step son |
What came first for you: chronic illness diagnosis or parenthood?
Parenthood.
What have been the biggest challenges you have faced as a parent or parent-to-be living with chronic illness? How have you adapted to those challenges?
Being diagnosed with Crohn’s disease post stoma surgery and navigating parenthood post surgery. I have since had another baby, and pregnancy with chronic illness and a stoma was an experience, challenging both mentally and physically. I have kept communication up with my close family and friends. My support network are very supportive.
What does a typical day look like for you and your family? Are there specific tips or systems that help your family function day-to-day?
I work full time and have 2 school age children and a toddler. Mornings can be challenging, and I think good preparation the night before can help. Days can also be unpredictable if pain can arise, as it can be very instant.
How do you talk to your children about your illness?
I am very open with my illness with the kids. They know all about my stoma and know days where I may be doing less than I normally would. I am very conscious to not let them see me too poorly as to not scare them.
What kind of support has made the biggest difference for you?
My partner is massively supportive, which really helps. He picks up the slack when I am not feeling 100%. I have grandparents who are happy to support when required. My MIL took my child away on holiday while I was getting my first surgery, which helped keep everything as normal has possible for him.
What is something you wish more people understood about parenting with chronic illness?
Just because I could do something one day, doesn’t mean I can all the time. My kids will always come first, regardless of how I am feeling, and adrenaline can sometimes get you through. Working full time and parenting with a chronic illness is draining and I can get tired easily. I rest when I can and my social battery isn’t as others would be.
If you could go back to the day of your diagnosis, what would you tell yourself?
Your kids will not be bothered. They are interested in your illness and won’t look at you any different. They will love you for who you are.
What does “facing forward” mean to you?
Facing forward to me means facing adversity and challenges head on. Powering through and supporting others in times of need together.
Here’s where you can connect with Jennie online!
- Instagram: @ostomummy
| 🌿 Facing Forward Moments: Jennie’s Recent Parenting WIN! 🌿 My son explained so eloquently my illness and struggles to a friend of his. They are 10, and him talking so openly about it made me so proud. To him it is not a burden, it’s something that saved his mum and it’s something to be celebrated. |
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